EORTC research around Quality of Life aims to:
- Develop and refine questionnaires to assess patients’ health-related quality of life in oncology clinical trials, other well-designed research studies and clinical practice
- Collaborate with other EORTC research groups in implementing health-related quality of life studies within their clinical trial programs
- Conduct research to better understand the effects of cancer and its treatment on the health-related quality of life of diverse populations of patients with cancer, across different cultures.
Professionals from various disciplines, including oncologists, radiotherapists, surgeons, psychiatrists, palliative care specialists, psychologists, social workers and research methodologists are involved in developing disease-specific treatment measurement modules to be administered in addition to the core quality of life questionnaire, the EORTC QLQ-C30. The modules, like the core questionnaire, are designed for use in cancer clinical trials, clinical practice and academic research.
Follow-up in Gynecological Cancer Survivors: An EORTC QLG-GCG Survivorship Study
Development of an EORTC questionnaire for individuals at risk for a Hereditary Cancer Predisposition Syndrome : the EORTC QLQ-HCPSxx
Comparative evaluation of the computer-adaptive EORTC quality of life measures
Understanding long-term implications of brain tumor treatment on HRQOL and cognitive functioning: a European cross-sectional study
Evaluating the use of the E-PRO measures for improving inter-rater reliability of CTCAE ratings
EORTC research in Quality of Life has led to the creation of the EORTC Quality of Life Questionnaire ( link to TOOLS – EORTC QLQ-C30), which has become one of the standard tools to measure quality of life in cancer clinical trials. The core questionnaire, currently available in over 100 languages, is accompanied by more than 20 fully-validated modules (link to appropriate section on QOL website), addressing disease or population-specific concerns.
Lonneke Van De Poll-Franse
Comprehensive Cancer Centre South
Jagiellonian University Medical College
Innsbruck Medical University
A. Brandes - Bologna, IT
A. Bottomley - Brussels, BE